Welsh sisters have to avoid excitement as it could kill them
March 11th, 2011 - 5:23 pm ICT by ANILondon, Mar 11 (ANI): Two girls in Wales, who suffer from an ultra-rare heart abnormality, have to avoid ever being shocked or excited, as it could kill them.
Chloe Church, 14, and her sister Evie, 11, of Swansea, suffer from an abnormality called Long QT syndrome, and they both have to avoid any sort of adrenaline rush as it could be fatal.
They are banned from having alarm clocks in case waking with a start gives one of them a heart attack, and teachers at their school also have to warn them whenever the bell is about to sound.
Scary films or TV programmes are off limits, along with lively sports and energy drinks, and doctors fear falling in love could also be lethal.
“I have had my first kiss and I survived. But I’ve never had the stress of a broken heart,” the Sun quoted Chloe as saying.
Her sister was the first to be diagnosed - when she suffered an unrelated kidney problem 2 and half years ago and went for a hospital scan, and tests showed that Chloe also had the condition.
Medics are still trying to discover just how much excitement the pair can safely handle.
For now Chloe can only envy friends who are able to go to under-18s club nights.
“She’s frustrated we won’t let her go. She also gets annoyed she can’t do energetic sports like swimming, hockey or football,” her mum, Samantha, 43, a sales assistant, said.
“The school even has to tell them when the bell is going to go.
“Sometimes it just feels like a time bomb waiting to go off. I feel on edge all the time - panicking when my phone rings in case it’s bad news.
“I do hope they discover a cure. I would love my girls to be able to do everything they want,” she added. (ANI)
- Brit sisters' incurable disease could kill them at any second - Aug 31, 2010
- Stem cells from patients could help test cardiac disease treatments - Jan 18, 2011
- Younger Kardashian's marriage a wake-up call for sister Kim - May 02, 2011
- Heart patient? Here's how to deal with World Cup madness - Apr 01, 2011
- Zoe Saldana loves working with guns - Jul 11, 2011
- Brit man, who changed gender, wins modelling contract - Mar 15, 2011
- Kimberley Walsh plans New Year party - Dec 24, 2010
- 'X Factor' hooker Chloe Mafia's ex reveals her past - Sep 26, 2010
- Jealous of someone? You'll end up paying more to be like them - Oct 19, 2010
- X Factor: Top 16 Revealed! - Oct 19, 2011
- I have stabbed my baby: British woman tells cops - Jul 29, 2011
- Oprah to be Blue Ivy's Godmother - Jan 27, 2012
- Brit woman didn't know she was pregnant until baby arrived in the bath! - Nov 24, 2010
- No Rapunzel, schoolgirl may die if she combs her hair - Aug 18, 2011
- Greetings from India ring bells at Bhutan's royal wedding - Oct 13, 2011
Tags: 18s, alarm clocks, bad news, broken heart, energy drinks, excitement, first kiss, half years, heart abnormality, heart attack, kidney problem, long qt syndrome, medics, phone rings, samantha, scary films, time bomb, tv programmes, two girls, welsh