The Effect of Primordial DwarfismApril 13th, 2009 - 9:34 pm ICT by GD
Three year olds Liam, Finn and Alex were born with microcephalic osteodysplastic primordial dwarfism type 2 (MOPDII), a condition that has made them half the size of other similarly aged toddlers and they are three of the other 150 people in the world affected with the disorder.
Liam from Nottingham is four years old and stands at 29 inches. He weighs as much as a three month old baby and has to wear specially made clothes. He, as well as the other three face the risk of brain conditions that may threaten their lives. But his parents
Robbie and Jo got inspiration from Danny, a primordial dwarf who grew to be twenty nine years of age and in spite of a struggle all his life has grown to a happy young man.
Alex is 30 inches tall and has feeding difficulty, one of the side effects of the condition. He has to be fed through a tube directly into his stomach and doctors are now conducting tests to check how solid food can be given to the boy without damage.
Finn from Wrexham is 25 inches tall and has to go through several tests to rule out brian aneurisms and Moyamoya disease which is a fatal vascular disease that can develop anytime. So far there have been nothing negative in her results.
Kenadie Jourdin Bromley is the smallest girl in the world born with primordial dwarfism in February 2003. She was not expected to live more than a day but she has survived, although she is not expected to grow past 30 inches or weigh more than 8 pounds. She is a cheerful girl but her special needs expenses are substantial, as with the other children affected with the disorder. Donations help their parents to provide these special children the semblance of a normal childhood.
Tags: aneurisms, brain conditions, bromley, cheerful girl, dwarfism, finn, girl in the world, month old baby, nine years, nottingham, primordial dwarf, primordial dwarfism type 2, semblance, solid food, special needs, three year olds, toddlers, vascular disease, wrexham, young man