Oz toddler with Goldenhar syndrome doesn’t know how to eat
July 30th, 2010 - 6:31 pm ICT by ANIMelbourne, July 30 (ANI): A one-year-old boy from Australia has never learnt how to eat, as he suffers from a condition called Goldenhar syndrome.
According to AdelaideNow, Asher White, from Encounter Bay, Adelaide, has been left with several facial deformities, including a jaw and tongue that have failed to form properly because of the condition.
He has never learnt how to eat solid foods, and his mum and dad, Joanne and Shannon White, who feed him through a tube, say doctors have given up hope of getting him to eat like other children his age in the near future.
“He has never learnt how to eat and we’ve done everything, from simple things like rubbing his gums to more complex things and doctors are at their wits’ end,” News.com.au quoted Asher’s mum as saying.
“People say ‘why don’t you offer him something sweet, that will work’, but it’s just not that simple. His tongue doesn’t work, there’s a lot of problems,” she revealed.
The family hopes to travel to the Austrian city of Graz, with their six-year-old son Daemon also in tow, so Asher can take part in a world-renowned, intense three-week feeding program that teaches children how to eat with a high success rate.
The trip, however, will cost about 30,000 dollars, with treatment accounting for 25,000 dollars of this. (ANI)
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Tags: accounting, adelaide, adelaidenow, asher, australia, austrian city, doctors, encounter bay, facial deformities, graz, gums, joanne, melbourne, mum and dad, shannon white, something sweet, success rate, tongue, wits end