Carla Sosenko reveals that she is suffereing from Kippel-Trenaunay Syndrome

May 20th, 2009 - 11:00 pm ICT by GD  

Carla Sosenko, who is a freelance writer and a full-time copy editor with the Bauer Publishing and currently resides in Brooklyn, has disclosed that she is suffering from a disorder of Klippel-Trenaunay Syndrome, in the issue of the magazine Marie Claire. She reveals that she was born with the disorder.

Talking about the disorder from which she has been suffering right from her birth, she says, “I was born with the rare circulatory disorder Klippel-Trenaunay syndrome (K-T), which translates differently for everyone who has it. For me, it means my right leg is larger than my left and trails slightly when I walk; my back is an uneven, fatty slab with a dense lump above the waist (which a guy in high school once called a meatball); and a gigantic port-wine stain reaches around my broad torso and down toward my right thigh. I know it could have been worse. I might have been blind; I might have needed amputation. I know that I’m lucky.”

So what actually is this Klippel-Trenaunay Syndrome or the KTS? National Institute of Neurological Disorders And Stroke explains this disorder as a “congenital circulatory disorder that typically presents with abnormal benign growths on the skin, arteriovenous abscesses and varicose veins.” Varicose veins are usually present in the limbs. The limbs that are affected by the KTS is characterized by enlargement of the limbs, which tend to get warmer than the normal body temperature. The presence of an extra finger or a toe or fused fingers and toes may be found in patients suffering from this disorder.

As for the cure for KTS, there is none at the present. KTS is a form of progressive disorder and the complications arising from it can lead to the patient’s demise.

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